On the brighter side

A big challenge when blogging about National Invisible Illness Week is avoiding rerun mode when discussing life with chronic illness. As in, wow, I was going to post every other day but suddenly it's Thursday! Oh well, a crazy barometer and the crazier schedules of the mom-taxi passengers, and so on...
I decided to focus instead on a couple of CI folks who chose to contribute to the positivity flowing in cyber world. The first is Michael Nobbs, a British artist, writer and tea drinker diagnosed in the late 1990s with ME/CFS/PVFS (otherwise known as Myalgic Encephalopathy/Chronic Fatigue Syndrome/Post Viral Fatigue Syndrome).



The debilitating fatigue that derails many a creative endeavor is Michael's daily existence; his philosophy, however, is about sustaining creativity in blocks of time based on available energy. He counsels that devoting even fragments of time to one's art leads to a collective body of work. He focuses on prioritizing, or as he says in his free email newsletter, "Getting Your Important Work Done."

His career as a creative despite a lack of resources is an inspiring reminder to me. Through his daily podcasts, drawings, newsletters and e-books his encouraging generosity can surmount the most wicked flare.

Many thanks to Michael! I hope you will check out his site, and find a way to support his important work!

Comments

Bleubeard and Elizabeth said…
What a brave young man you have spotlighted. And you are brave, too, Patti. I know how hard it is to keep on top of things, like blog posts.
September 16, 2011 at 8:56 AM
Lynn Cohen said…
How very interesting. I work with clients (as a couselor) some of whom have these invisable diseases...and today a new friend who paints told me she has one too. Grateful for finding all these resources here!!!!!
September 23, 2011 at 11:38 PM
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